Congenital Heart Defects/Disease

“When we first found out about Aiden’s defect, we had no idea that so many other children go through this same thing”

When I first started my research on Aiden’s condition I was blown away by the statistics.  1 in 4 children are born with a CHD.  Mind-blowing. We heard so much about what could happen with triplets - having them too early, issues during pregnancy - we never thought to think about “what if something is literally built wrong?”.  It was something that took a little while to wrap our heads around.  


We are consumed with conditions that can be cured - but what about those that cannot be?


It hit me one late night as I was researching this whole world that there is no cure for this.  There is no amount of money that can “find a cure” for this type of condition.  This is something that these children and their families live with forever.  Each of them will forever be heart patients.  They will forever have to endure all the appointments, medications, procedures, and more.  

 
About CHD

Congenital heart disease is one or more problems with the heart's structure that exist since birth. Congenital means that you're born with the defect. Congenital heart disease, also called congenital heart defect, can change the way blood flows through your heart.

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Congenital Heart Defects are the most common type of birth defect. Affecting approximately 40,000 babies born in the US each year, they are present at birth and can affect the structure of a baby’s heart and the way it works.

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About 1 in 4 babies born with a CHD has a critical CHD. Babies with a critical CHD need surgery or other procedures usually in the first year of birth.  

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CHD is approximately 60 times more prevalent than childhood cancer

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CHD is the cause of nearly one-third of the birth defect-related deaths of infants

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Children with heart defects are often at lifelong risk for other medical problems and cognitive or developmental complications

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Caring for children with heart defects is a challenging and complex endeavor that causes emotional and financial stress for families, and requires many hospital resources.